Parent advocate Judith Sibley, who lives in Claregalway, will speak about Navigating clinical trials as a parent of a child with a rare disease at next week’s conference which will focus on public and parent involvement (PPI) in research, at the Westwood Hotel on Wednesday from 10am to 3.45pm. She is the mother of Lily-Mae Morrison,… Read more »
Some of Galway’s most iconic buildings are set to go gold this weekend as part of an initiative to highlight awareness of children’s cancer. The Light It Up Gold event is being held worldwide and will see hundreds of landmarks illuminated in gold over the coming week. September is Childhood Cancer Awareness Month and gold is in the… Read more »
The 4th of March 2014, happy Pancake Day everyone… The 4th of March 2013, the best day of our lives. Lily-Mae’s oncologist called to say her scans showed No Evidence of Disease! The chemo had worked. Cyclophosphamide, etoposide, cisplatin, carboplatin, vincristine, topotecan, doxorubicin, busulfan and melphalan were all pumped into our darling baby, repeatedly, to try… Read more »
by Marie Madden, Galway Independent Galway’s Tiny Dancer Lily-Mae Morrison will fly to the US to participate in a clinical trial next month, following news that she is now in remission. Judith Sibley and Leighton Morrison received the “best possible news” about the five-year old’s condition last week, with confirmation that her scans for neuroblastoma… Read more »
A fundraising night for Lily-Mae Morrison and other children suffering from neuroblastoma will be held in Monroe’s Live on Saturday October 5th from 9pm. The event will be attended by many of the famous names, friends, and family who gathered to help record Elton John’s classic hit Tiny Dancer, to raise funds for Claregalway girl… Read more »
by Jacqueline Hogge, The Tuam Herald Some of Galway’s landmark buildings are to to be lit up in gold next weekend, to highlight an awareness of cancer among children. The Light It Up Gold campaign is being promoted throughout the country over the coming weeks by the parents of children being treated in St. John’s… Read more »
Galway’s Tiny Dancer Lily-Mae Morrison was presented with a cheque for €95,000 at a special fundraising night held in Monroe’s Live, Dominick Street on Friday night. The cheque, the proceeds of the charity single Tiny Dancer, will be divided between the Sunni Mae Trust and the Neuroblastoma Society, and was presented in person to Lily-Mae and… Read more »
A letter to our daughter on the eve of her fifth birthday that she may read when she is cancer free and living the life we have always hoped for her. Dear Lily–Mae, Tomorrow, you, our beautiful daughter and our Tiny Dancer, will turn five. We will be having a small celebration here in London,… Read more »
Claregalway’s Tiny Dancer Lily-Mae Morrison arrived in London yesterday to start the next phase in her battle against neuroblastoma. The brave four-year old met with a new medical team in the UK, where she will begin preparations for groundbreaking Intensely Moderated Arc Therapy (IMAT). This latest step in Lily-Mae’s treatment follows a gruelling period of… Read more »
Brave Tiny Dancer Lily-Mae Morrison was given a hero’s welcome back to her desk at the Educate Together school, Claregalway last week, only days after she had undergone major treatment for a rare form of childhood cancer at Crumlin Hospital. The little girl was tired but happy to be back and ensconced among her school… Read more »
When Paul Hayes of The Barbican Community Centre in Drogheda sent us the following email, our hearts stopped and our minds thought of nothing else besides the current condition of a four year old girl named Lily-Mae Morrison. Rather than explain what the message entailed, we have decided to publish the actual email which Paul sent into… Read more »
Four year old Lily-Mae Morrison from Claregalway is suffering from Stage 4 Neuroblastoma, a rare and extremely aggressive childhood cancer of the nervous system. She is the daughter of professional ballet dancers, Judith Sibley and Leighton Morrison. When she grows up, she wants to be a ballet dancer like her Mummy and Daddy but Neuroblastoma… Read more »
